Every day, thousands worldwide find out they have a disease or a health condition or disease that requires care. And each day, more and more people don’t get the care they need because they don’t understand what they have or their options regarding treatment and management. When diverse populations aren’t included as participants in clinical trials, knowledge about the efficacy of a treatment can get skewed toward population or group over another. Without diversity, doctors can’t fully understand why a treatment works in one population but differently in another. Information like this can significantly affect how doctors treat patients.

This is why health literacy matters.

Not familiar with the term “health literacy”? Here’s a simple definition.

Health literacy means you:

  • can get the medical information you need.
  • can read the information provided.
  • can understand the information.
  • can make informed health decisions.
  • can follow instructions for the treatment prescribed.

At Jumo Health, we believe everyone deserves access to relatable medical resources regardless of age, language, culture, or education. We also believe no one should need a Ph.D. or M.D. to understand what’s happening in their bodies or what will happen in a clinical trial they’re considering. Yet 88% of adults aren’t health literate, and 50% can’t read beyond an 8th-grade level. Here’s another scary statistic: 65% of people say they receive resource materials they can’t understand.

Unfortunately, 88% of adults aren’t health literate, and most of the educational materials they receive are written at a 10th-grade reading level or higher. Yet, the National Institute of Health (NIH) states that medical educational materials “should not exceed a 6th-grade reading level.” Also, in a recent survey by Market Media U.S., more than 90 million people in the United States alone struggle with understanding and using health information.

Combine that with forgotten information, Dr. Google, and advice from friends of friends, and it’s a perfect storm of confusion, fear, and misunderstandings. After all, a patient may be overwhelmed by a new diagnosis or the sheer volume of information they need to process to decide whether to join a clinical study or start a new treatment. In addition, patients may prefer to digest the information in a particular format, be it direct discussion, learning online, watching a video, listening to a podcast, or reading a brochure. Therefore, creating materials that are cognizant of an audience’s education level, cultural background, socio-economic background, and age is essential.

Having materials that are easy to understand is so important because, for clinical trials, misunderstandings can derail the research before it begins. If patients don’t understand what researchers are studying or what will happen during the study, they won’t join, much less stay enrolled. And if patients don’t enter these studies, new medicines can’t be researched to see if they’re safe and can help.

According to a recent article published by the CDC this past spring, “When patients are provided with culturally and linguistically appropriate information, they are empowered to create healthier outcomes for themselves and their communities.”

So, how can we bridge the gap between a doctor’s knowledge and a patient’s understanding? Below are three easy ways to help you do just that.

3 Ways to Increase Patient Understanding:

1) Write resources and materials that fit your target audience’s age, reading level, and cognitive level.

  • Make sentences easy to read and straightforward.
  • Use bullets wherever possible.
  • Use icons, infographics, or illustrations to help drive home your message visually.
  • Pay attention to word counts, syllable counts, and your use of familiar words.

2) Consider the target audience’s preferred language and translate the materials and resources into that language.

  • Invest in a reputable translation service to ensure the translation of your content is correct.

3) Create a simplified Informed Consent Form.

  • Avoid medical jargon.
  • Explain things simply.
  • Keep sentences short and to the point.

Interested in learning more about health literacy and how we do what we do? Visit blog.jumohealth.com/contact to get in touch!