About Us


Patient advocates are the lynchpin to the communities they serve. We are proud to work alongside many of these organizations to produce resources to help support the patient journey to understanding and action.


The JED Foundation

JED is a nonprofit that protects the emotional health and prevents suicide for our nation’s teens and young adults. We’re equipping teens and young adults with the skills and knowledge to help themselves and each other.

All Advocacy Partners

ADDults with ADHD Australia
Allergy and Asthma Network
Allergy New Zealand
American Academy of Physician Assistants in Allergy, Asthma & Immunology
American Cancer Society
American College of Allergy, Asthma and Immunology
American College of Chest Physicians
American Society for Parenteral and Enteral Nutrition
Arthritis Society
Association for Multiple Endocrine Neoplasia Disorders
Association for Radiologic & Imaging Nursing
Association of British Dispensing Opticians
Association of Oncology Social Work
Asthma Society of Canada
Asthma UK
Athletes vs. Epilepsy
Australasian Consortium of Centres for Clinical Cognitive Research
Australasian Society of Clinical Immunology and Allergy
Australia and New Zealand Burn Association
Australian & New Zealand Society for Geriatric Medicine
Australian and New Zealand Association of Neurologists
Australian Rheumatology Association
Big Lottery Fund
Bladder and Bowel Foundation UK
Body Charity UK
Bone Cancer Research Trust
Boshier-Hinton Foundation
Bowel Cancer Australia
Brain Injury Association of New Zealand
Brain Trust
Brain Tumour Charity
Breast Cancer Care
Breast Cancer Network Australia
British Association of Stroke Physicians
British Geriatric Society
British Geriatric Society (Movement Disorder Division)
British Liver Trust
British Nutrition Foundation
British Orthopaedic Association
British Paediatric Respiratory Society
British Skin Foundation
British Society for Immunology
British Society of Gastroenterology
British Society of Interventional Radiology
British Thoracic Society
British Transplant Society
British Trauma Society
CAH Support Group
Canadian Association of Psoriasis Patients (CAPP)
Canadian Dermatology Association
Canadian Epilepsy Alliance
Canadian Haemophilia Society
Canadian Society of Respiratory Therapists (CSRT)
Centre for Healthy Brain Aging
Changing Faces
Chest Foundation
Child Mind Institute
Child Neurology Foundation
Child’s Play Charity
Childhood Eye Cancer Trust
Children with AIDS Charity
Children’s Burn Foundation
Children’s Burns Trust
Children’s Cancer and Leukaemia Group
Children’s Glaucoma Foundation
Children’s HIV Association
CLL Support Association
College of Optometrists
COPD Foundation
Crohn’s & Colitis Association
Crohn’s in Childhood Research Association
Cure Parkinson’s Trust
Cure UCD
Cystic Fibrosis Foundation
Cystic Fibrosis Trust
Dementia Collaborative Research Centres
Diabetes Youth
Dystonia Society
Eczema Association
Eczema Society
Education and Resources for Improving Children’s Continence
Encephalitis Society
Epilepsy Action
Epilepsy Foundation
Epilepsy Society
European Parkinson’s Disease Association
European Society for Immunodeficiencies
European Society for Medical Oncology
European Society of Endocrinology
Friends of Karen
Gastroenterological Society of Australia
Haematology Society of Australia & New Zealand
Haemophilia Society
ICU Foundation
Image Gently
Immunology and Allergy Nurses Group
International Children’s Advisory Network
International Children’s Continence Society
International Chronic Myeloid Leukemia Foundation
International Glaucoma Association
International Niemann-Pick Disease Alliance
Julian Burton Burns Trust
Juvenile Diabetes Research Foundation
Kids’ Cancer Project
Learning & Attentional Disorder Society of WA Australia
Leukaemia and Lymphoma Research
Leukemia & Lymphoma Society
LGS Foundation
Lung Foundation
MAGIC Foundation
McGrath Foundation Australia
Melanoma Patients Australia
Mental Health Foundation
Moorfields Eye Hospital
MS Australia
MS Society
National Association of Pediatric Nurse Practitioners
National Association of School Nurses
National Autistic Society
National Hemophilia Foundation
National Rheumatoid Arthritis Society
National Scoliosis Foundation
New Zealand Breast Cancer Foundation
National Health System
Northumbria University
Oley Foundation
Orthopaedic and Trauma Alliance
Orthopaedic and Trauma Society
Ostomy Lifestyle
Paediatric Stoma Nurse Group
Parkinson’s Disease Nurse Specialist Association
Pediatric Endocrinology Nursing/Nurses Society
Photopheresis Society
Primary Immune-Deficiency Patient Support
Primary Immunodeficiency Network
Primary Immunodeficiency UK
Promoting Continence
Pulmonary Hypertension Association
Roy Castle Lung Foundation
School and Public Health Nurses Association
Scoliosis Research Society
Shine on MS
Sickle Cell Society
Society of Interventional Radiology
Society of Urologic Nurses and Associates
Spine Society of Australia
Spinecare Foundation Australia
St. James’s Place Foundation
Stroke Association
Teenage Cancer Trust
Teesside University
The Clothworkers’ Foundation
The Human Growth Foundation
The Institute for Optimum Nutrition
The JED Foundation
The Pituitary Foundation
Thoracic Society
Transplant Kids
Trauma Care
Turner Syndrome Foundation
UK CLL Forum
United Pompe Foundation
University of Aberdeen
University of Dundee
University of Greenwich
World Federation of Pediatric Imaging
World Gastroenterology Organisation

We do a lot of cool things … but this one holds a special spot. If you are a kid, how do you tell other kids about why you or your parent may be “different”? If you’re a parent with young kids, how do you describe a complex disease to them so that they can understand it? Really proud to have been a part of this project!

– Senior Product Manager, Pharmaceutical Client

Interested in partnering with us?

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